Rare Disease Day 2022:


Besim ist einer von diesen Patienten. Er hat eine primäre Hyperoxalurie Typ I, eine ultra-seltene Erkrankung der Leber, die aber im Verlauf zuerst zu Nierenproblemen führt. Aber, lassen wir doch Besim und seine Mutter seine Krankengeschichte erklären.

A Primary Hyperoxaluria Story:
our new video, to understand primary hyperoxalurias in a very easy way!

More Information

Europe is not only a continent. Europe is a rich variety of cultures and languages, with a strong historical background, which makes Europe a pleasurable place to live and to enjoy. These different cultures and languages need to be supported by united European projects, to

  • bring reliable and up-to-date information about rare diseases in your own language,
  • provide you with a better understanding of the disease and,
  • improve our connection as one united community, in which different languages will no longer be a barrier.

  • Please find a link to every current project in the specific language below.

    In most of the pages we have produced so far you will find the information translated into six different languages. We are currently working to translate our projects even into more languages. Our challenging European project has indeed a positive side effect: we can also reach the big Spanish speaking community in Latin America, in the US and the Portuguese community in Brazil! It is a great advantage that they can also use our information and read everything in their own language!

    We are proud about our team and you are more than welcome to send your ideas, suggestions, comments to improve our working.


    Get In Touch

    • Email info@phhp-team.net
    • Address PH&HP-Team
      c/o Kindernierenzentrum Bonn
      Im Mühlenbach 2b
      53127 Bonn, Germany