Our projects:

As an example the links below will guide you to gain in-detailed information about our ideas and projects related to Primary Hyperoxaluria. Have a look!


The European website of the European PH advocacy group, translated in six different languages.


the website of the German Hyperoxaluria Center.

The PHlower

The PHlower:
the symbol of Primary Hyperoxaluria.


our European campaign for increasing the awareness about PH in Europe and around the world.

Emergency Card

Emergency Card:
In case you are in trouble, this is the way to get help!

Painting book for kids with PH

Painting book for kids with PH:
an educative book for kids based on a real patient story.

Painting book for kids with PH

My Life with Primary Hyperoxaluria:
The spectacular adventures of Evil Liver & Amazing Kidney.


Our project for RAREDISEASEDAY 2021

The island organs video:
an educative video for kids to understand how our organs deal with oxalate.

More Information

Europe is not only a continent. Europe is a rich variety of cultures and languages, with a strong historical background, which makes Europe a pleasurable place to live and to enjoy. These different cultures and languages need to be supported by united European projects, to

  • bring reliable and up-to-date information about rare diseases in your own language,
  • provide you with a better understanding of the disease and,
  • improve our connection as one united community, in which different languages will no longer be a barrier.

  • Please find a link to every current project in the specific language below.

    In most of the pages we have produced so far you will find the information translated into six different languages. We are currently working to translate our projects even into more languages. Our challenging European project has indeed a positive side effect: we can also reach the big Spanish speaking community in Latin America, in the US and the Portuguese community in Brazil! It is a great advantage that they can also use our information and read everything in their own language!

    We are proud about our team and you are more than welcome to send your ideas, suggestions, comments to improve our working.


    Get In Touch

    • Email info@phhp-team.net
    • Address PH&HP-Team
      c/o Kindernierenzentrum Bonn
      Im Mühlenbach 2b
      53127 Bonn, Germany