Welcome! We are glad to say hello to you as the PH&HP team!

Within this website you can read about us and our projects. Please, do not hesitate to get back with us if you have any question by contacting us at: info@phhp-team.net

The PH&HP team has been created by

We are scientists very much committed to promote information to patients, families and the society as a whole about an ultra rare disease: Primary hyperoxaluria. We also support the European Primary hyperoxaluria advocacy group with our ideas.

Our projects:

The links below will guide you to gain in-detailed information about our ideas and projects related to Primary Hyperoxaluria. Have a look!

www.ph-europe.net

www.ph-europe.net:
The European website of the European PH advocacy group, translated in six different languages.

www.hyperoxalurie-center.de

www.hyperoxalurie-center.de:
the website of the German Hyperoxaluria Center.

The PHlower

The PHlower:
the symbol of Primary Hyperoxaluria.

Bike4kidneys

Bike4kidneys:
our European campaign for increasing the awareness about PH in Europe and around the world.

Emergency Card

Emergency Card:
In case you are in trouble, this is the way to get help!

Free Template by uicookies.com

The island organs video:
an educative video for kids to understand how our organs deal with oxalate.

Painting book for kids with PH

Painting book for kids with PH:
an educative book for kids based on a real patient story.

More Information

Europe is not only a continent. Europe is a rich variety of cultures and languages, with a strong historical background, which makes Europe a pleasurable place to live and to enjoy. These different cultures and languages need to be supported by a united European project, to

  • bring reliable and up-to-date information about Primary Hyperoxaluria in your own language,
  • provide you with a better understanding of the disease and,
  • improve our connection as one united community, in which different languages will no longer be a barrier.

  • Please find a link to every current project in the specific language below.

    In most of the pages we have produced so far you will find the information translated in-to six different languages. We are currently working to translate our projects even into more languages. Our challenging European project has indeed a positive side effect: we can also reach the big Spanish speaking community in Latin America, in the US and the Portuguese community in Brazil! It is a great advantage that they can also use our informations and read everything in their own language!

    We are proud about our team and you are more than welcome to send your ideas, suggestions, comments to spread the voice among the international PH community. Our mascots, the running oxalates Oxy and Laty will be happy to help!

    PHHP-Team

    Get In Touch

    • Email info@phhp-team.net
    • Address PH&HP-Team
      c/o Kindernierenzentrum Bonn
      Im Mühlenbach 2b
      53127 Bonn, Germany